Genomic Data Protection Act
In committee: it can still change before the session ends.
- Stage
- In committee
- Started in
- Senate
- Sponsors
- 2
- Latest action
- Mar 5, 2025
What it does
The Genomic Data Protection Act would require direct-to-consumer genomic testing companies to provide consumers with a simple and effective mechanism to access, delete their genomic data and associated accounts, and request destruction of their biological samples, with such requests to be fulfilled within 30 days. The bill mandates clear, conspicuous notices about these rights and the potential sharing of deidentified genomic data for medical or scientific research, and requires advance notice to consumers if the company is acquired by another entity. Enforcement would be handled by the Federal Trade Commission, treating violations as unfair or deceptive acts or practices under the FTC Act,…
No official summary is available here. This one was written by AI from the bill’s text.
Where it stands
Introduced (Done)
Committee (Current step)
Floor (Not started)
Law (Not started)
What moved
Who is involved
Sponsors
The lawmakers who put their names on it, lead sponsors first.
Where it goes next
While a bill can still move, the questions are about people and money.