Rare disease advisory council.
This bill did not become law and its session has ended, so it can no longer move. It would have to be reintroduced.
- Stage
- Session ended
- Started in
- Senate
- Latest action
- Jan 19, 2023
What it does
Defines "rare disease" as a disease that affects fewer than 200,000 people in the United States. Establishes a rare disease advisory council (council). Provides for appointment of the members of the council. Requires the council to fulfill certain duties for the benefit of patients with rare diseases. Requires the council to submit an annual report to the governor and the members of the senate health and provider services committee and the house public health committee.
Where it stands
This bill did not become law and its session has ended, so it can no longer move. It would have to be reintroduced.
Introduced (Done)
Committee (Current step)
Floor (Needs attention)
Law (Not started)
What moved
Who is involved
Sponsors
The lawmakers who put their names on it, lead sponsors first.
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